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Interstitial Cystitis

Social-Security-Disability-Forum » Interstitial Cystitis  

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Tiffany

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Posted on Monday, September 24, 2001 - 12:17 pm:   Edit Post Delete Post View Post/Check IP    Move Post (Moderator/Admin Only) Ban Poster IP (Moderator/Admin only)

I have recently, after years of problems, been diagnosed with a bladder disease called interstetial cystitis. This condition leaves me having the frequent urgency to urinate often with nothing. It also affects my legs, in which sometimes I can hardly walk . I have to miss work when this flares up. I am 26 years old, and have had the same job for 6 years . Please help me in anyway possible. Let me know what to do first .

Reply by Paul With this particular disease, I would immediately hire an attorney and I would sit down and have a long talk with my doctor. Some doctors are more sympathetic to this disease than others. Be sure he or she is 100% behind you. The Administration can be a little hostile to certain diseases as being disabling, which is of course not fair, but is true. Severe cystitis can be very painful.
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Henry G. (Unregistered Guest)
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Posted on Friday, July 08, 2005 - 11:10 pm:   Edit Post Delete Post View Post/Check IP    Move Post (Moderator/Admin Only) Ban Poster IP (Moderator/Admin only)

At http://www.disabilityfacts.com , you can order publications written by attorney Douglas Smith. At this website, there is one publication that specifically outlines what documentation is required to prove disability on the basis of interstitial cystitis.
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Henry G. (Unregistered Guest)
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Posted on Friday, July 08, 2005 - 11:13 pm:   Edit Post Delete Post View Post/Check IP    Move Post (Moderator/Admin Only) Ban Poster IP (Moderator/Admin only)

According to the book "Nolo's Guide to Social Security Disability: Getting and Keeping Your Benefits"---

"If you have IC, clearly and fully document the nature of your symptoms and exactly how those symptoms limit your ability to function. Your treating doctors must be able to support your allegations, along with your treatment failures or successes."
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Henry G. (Unregistered Guest)
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Posted on Friday, July 08, 2005 - 11:15 pm:   Edit Post Delete Post View Post/Check IP    Move Post (Moderator/Admin Only) Ban Poster IP (Moderator/Admin only)

"The most debilitating cases of IC might be considered of equivalent severity to Listing 6.02, although the kidneys are fine. Other cases might sufficiently limit your ability to perform particular types of jobs and qualify you on a medical-vocational basis."

(from "Nolo's Guide to Social Security Disability: Getting and Keeping Your Benefits")
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Tina Samuels (Unregistered Guest)
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Posted on Thursday, July 14, 2005 - 2:47 pm:   Edit Post Delete Post View Post/Check IP    Move Post (Moderator/Admin Only) Ban Poster IP (Moderator/Admin only)

I have a brand new SSI section at my IC website:
http://cystitis.allinfoabout.com
All Info About Interstitial Cystitis


More new pages include:
Chronic Pain
Urinary tract Infections
Your Urinary Tract System
Alternative Therapies for Cystitis
the Cystitis Diet

If you are interested or know someone who would be, feel free to send them my way:
http://cystitis.allinfoabout.com

All Info About Interstitial Cystitis
Tina
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Henry G. (Unregistered Guest)
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Posted on Sunday, April 02, 2006 - 3:44 pm:   Edit Post Delete Post View Post/Check IP    Move Post (Moderator/Admin Only) Ban Poster IP (Moderator/Admin only)

Additional information about applying for SSA disability benefits on the basis of IC is available at the Interstitial Cystitis Association website: http://www.ichelp.com
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Cindy Jolly (Unregistered Guest)
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Posted on Saturday, July 15, 2006 - 11:01 pm:   Edit Post Delete Post View Post/Check IP    Move Post (Moderator/Admin Only) Ban Poster IP (Moderator/Admin only)

Hi. I am severly struggling with IC and live in NC. Can you tell me how to get in touch with you? I, very much, want to investigate the long road of filing for disability benefits.
My email is CindyJolly@trid.rr.com
Thanks.

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